Firstly, sorry for not posting in like forever! Time has passed, Im still on dialysis and still waiting for a transplant but overall in myself I am fine. I recently had another assessment and they are happy with me and are keeping me on the waiting list. My girlfriend is still fantastic and I’m still smug!
The London Bridges Walk has come around again already and this year we are priming up for a larger group of us to take part. So far there are 7 of us shortly to be wondering around Norfolk with our sponsorship forms waving in our hands but just in case we don’t bump into you in person you can go to the Kidney Research UK fundraisers page and donate online to our cause at (drum roll please…) http://www.kidneyresearchukevents.org/narborough
Well Sunday the 10th July finally arrived! My friend Dessie and I had been raising funds for the walk for a couple of months prior and can proudly say as I type so far we have raised over £1100 for Kidney Research UK, so thank you to everyone who was kind enough to give, and a big thank you to the girls at the social club for walking round with the sponsorship forms!
Two friends accompanied us on the day, Our Social Club Steward Chris Harfield and a friend Carol Brownley. Chris H kindly offered to drive, an offer that was snatched upon! The weather was perfect to go with the perfect company and when we arrived to register for the walk Chris and Carol decided to postpone their shopping trip and promptly registered as well! (Thanks again guys)
London Bridges Walk
Apparently there were approximately 1000 people taking part in the walk which started at 11am at Potters Field on the south bank near Tower Bridge after an intro & count down by Angela Rippon.
All in all it was a fantastic day and witnessing the sea of purple clad people walking the Embankment was a sight I shall not soon forget!
Hopefully the walk has raised awareness as well as raised funds for Kidney Research UK and I’m already looking forward to next year!
Well its under a month now to the big day! My friend Dessie and I are on track to meet our target of raising £1000 for Kidney Research UK. Our information packs along with our race/walk number and most importantly our purple t-shirts have arrived! Its all getting very exciting!
Debating whether or not to go the whole hog an dye my hair purple?!
So after a few false starts, fingers crossed I will have the opportunity along with my friend Dessie to raise money for Kidney Research UK. We are taking part in the London Bridges Walk and trying to raise money and awareness for the charity along with 100’s of others on the day I hope!
The walk takes place on the 10th July and incorporates 8 of London’s bridges over about 7 miles.
With me (touch wood) running on a fairly even keel at the moment and with my friend there to help hopefully it should be a great day out!
Thank you Mr Lennon for the title quote. A comment that strikes a particular chord with me.
I’ve spent a lot of time either putting off plans until I’m lucky enough to have a transplant, or making tentative plans for after I’ve been lucky enough to have a transplant. The truth is though that life is passing by while I have refused to make or carry out plans for the short and medium term.
And somewhere along the way I’ve started to lose my sense of humour as well – something I need to remedy! So its settled, I’m going to be a famous photographer, musician and swimming athlete after my transplant, though granted probably not all at the same time…. Now what to do in the meantime?!
I’m hoping to move shortly to a place of my own, a little piece of imaginary independence, quite important to all of us as we get older! And employment? Well I’m still looking, still applying, still waiting, ever hopeful! I did stop long enough to evaluate what would be my perfect job if everything was hunkydory which was basically to use the skills I have gained over 35 years to try and help others. Ideally photography would be in the mix somewhere, although if necessary it would be a way of bringing in a little extra spending money in my spare time. So to that effect I’ve started homing in on the areas of employment that are aimed at helping people, typically called the Third Sector in this country, somewhere in-between the Public and Private Sector, where both private and public donations are used to fund improvements to the lives of those of us not so fortunate.
Live Life Then Give Life
Those of you of a healthy disposition I beg to spend ten minutes looking at this link: LLTGL Life Stories.
Even those of you without a healthy disposition! After finding out that I could myself donate my organs should the worst happen I joined the donor register online. Apparently 3 people die every day in the UK while waiting for a transplant…
If you’re feeling particularly keen about raising awareness as I am, I can recommend the T shirt which can be ordered from the following page: Clicky
I’ve certainly turned a few heads walking around town wearing one!
Finally a special thank you to a special someone.
I wont deny that the last few months have been challenging in the extreme. My parents business struggling, my low self-esteem, a couple of health scares, worry over my transplant assessment, depression over dialysis and general loneliness to mention a few (crikey what a whinge!)
Somewhere along the line someone broke down my carefully placed barriers, got inside, put an arm around me and somehow kept me afloat, that special someone means the world to me.
I wish things could be different so you could always keep me afloat, and I wish you could see for yourself how special you are, but alas you’re destined to make some other git happy!
I on the other hand will have to keep on looking for “Someone Like You” 😉
Gosh, wasn’t that last post totally depressing?!
You’ll be glad to know I did pick myself up again. I sometimes feel that men get some sort of hormonal imbalance once a month or so too, not nearly as strong as women do obviously, but enough to knock one off ones perch emotionally.
Well I’ve survived another birthday since I last blogged and I celebrated my 14th kidneyversary on the 14th Nov. My transplant is still hanging on by a thread. Although I still need dialysis I can still just about eat a normal diet (something to be positive about).
I read recently from the Addenbrookes Kidney Patients Association magazine about a young lady called Sarah Springett who had donated a kidney to her boyfriend. That in itself I thought was impressive, but she also is the lead singer in a band called The Floe. They recently released a single called “I hope you know” where all profits were donated to “Live Life the Give Life” a charity aimed at getting people on the organ donation register (Go to The Floe’s site now and buy it….you will, you will, you will….ah go on!).
Anyway to cut a long story short I went to see their last gig of the year on Friday. It was brilliant. Sarah’s vocal range and emotion has to be heard to be appreciated and Liz Townsend, the instrumental genius of the group, was no less impressive. The venue was Jurnet’s Bar in Norwich, a converted wine cellar and the perfect intimate setting for The Floe. I felt truly privileged to see them in such a small venue because I think they will go on to be huge.
Oh did I mention their Album is available to download on their site? It’s rather good…
Well I should have known really…
I have been involved with my local village Social Club and the Chairman’s father in law is also a renal patient. We had come together and arranged with the help of the Club Steward, a fundraising evening for the Addenbrookes Kidney Patient Association (AKPA) on the 20th November where a “Queen” tribute band had been booked. Tickets were to be £10 and all proceeds go to the AKPA.
I spent an age creating the advert, Chris (The Cub Steward), Dave (Mr Chairman to you!) and myself have been putting up posters. Dave paid to have tickets printed using my artwork.
So the band call today to pull the plug due to illness. Not their fault, but FOILED AGAIN! Another attempt at raising some cash for charity is scuppered.
I’m a little bit disappointed this evening and somewhat disillusioned. Alright I’m sulking. My photograph didn’t sell on eBay. It was a nice idea, auction off some prints to a good cause, try and raise cash for what I think is a worthwhile charity. Not even a snifter of interest.
My self belief is on somewhat of an ebb at the moment so I have to wonder if my image was good enough.
I’m keen to try and raise money for the British Kidney Patient Association but I’m somewhat at a loss as to how I’m going to go about it. Most people would run a marathon or ride on their bicycle up Mount Everest or something similar but alas I’m just not able to do that sort of thing right now. All I have is my photography. Perhaps I shouldn’t take it personally and try again with a different image and try and think of something suitably witty to say in the description to attract attention
Perhaps I’ll use this image I took when I was a teenager just beginning my kidney troubles, I think it kind of shows how we all feel sometimes
Anyway I’ll give it some thought over the next few days, I’m going to attempt to get up early and get to the pool for 7am tomorrow/today so to bed I must go………
I have recently set up an Ebay site for my parents business and the thought occured to me that I could try and auction some of my photographs to raise funds for charity. Two charities that sprung to mind immediately was the British Kidney Patients Association, and where I am volunteering at the Papworth Trust.
The question is will my photos sell?! Or rather will they sell at a price worth making the effort?
Anyway as an experiment my first image has gone live on eBay so fingers crossed people are in a generous mood! If it is successful then I’ll add more images and if it goes really well then I’ll add special limited edition Gyclee prints