Firstly, sorry for not posting in like forever! Time has passed, Im still on dialysis and still waiting for a transplant but overall in myself I am fine. I recently had another assessment and they are happy with me and are keeping me on the waiting list. My girlfriend is still fantastic and I’m still smug!
The London Bridges Walk has come around again already and this year we are priming up for a larger group of us to take part. So far there are 7 of us shortly to be wondering around Norfolk with our sponsorship forms waving in our hands but just in case we don’t bump into you in person you can go to the Kidney Research UK fundraisers page and donate online to our cause at (drum roll please…) http://www.kidneyresearchukevents.org/narborough
Well I had my assessment and they seem very happy with me, So I remain active on the waiting list – Woohoo!
In the meantime I will continue to try and lose weight and increase my fitness, and try and remain positive!
Gosh, wasn’t that last post totally depressing?!
You’ll be glad to know I did pick myself up again. I sometimes feel that men get some sort of hormonal imbalance once a month or so too, not nearly as strong as women do obviously, but enough to knock one off ones perch emotionally.
Well I’ve survived another birthday since I last blogged and I celebrated my 14th kidneyversary on the 14th Nov. My transplant is still hanging on by a thread. Although I still need dialysis I can still just about eat a normal diet (something to be positive about).
I read recently from the Addenbrookes Kidney Patients Association magazine about a young lady called Sarah Springett who had donated a kidney to her boyfriend. That in itself I thought was impressive, but she also is the lead singer in a band called The Floe. They recently released a single called “I hope you know” where all profits were donated to “Live Life the Give Life” a charity aimed at getting people on the organ donation register (Go to The Floe’s site now and buy it….you will, you will, you will….ah go on!).
Anyway to cut a long story short I went to see their last gig of the year on Friday. It was brilliant. Sarah’s vocal range and emotion has to be heard to be appreciated and Liz Townsend, the instrumental genius of the group, was no less impressive. The venue was Jurnet’s Bar in Norwich, a converted wine cellar and the perfect intimate setting for The Floe. I felt truly privileged to see them in such a small venue because I think they will go on to be huge.
Oh did I mention their Album is available to download on their site? It’s rather good…
Apologies for no recent updates, unfortunately for me I have been rather ill this last fortnight with what is now assumed as food poisoning from a tasty but rather dodgy chicken jalfrazi, which seems to in turn have set of a Gall bladder episode. I don’t mean to be too graphic but haemodialysis with epic bum-wee is not a good combination and potentially very embarrassing as well as dangerous. In all it was a week that I would like to well and truly put behind me (!). Seems I have Gall stones as well so they are looking at whipping my gall bladder out soon too. Fantastic. I’m suprised its still there actually along with my other internal organs – I was quite sure I had passed them all out my bum at one stage.
The bad news is that this episode seems to have hammered the final nail in my kidney graft which while I needed dialysis was still functioning enough for me to keep to a pretty normal diet and my fluid restriction will probably now go from 1000ml to 500ml a day – a little under a pint in old money. This in turn is going to make it harder for me to continue to have much of a social life unless I want to sit there with my arms folded while everyone else necks pint after pint.
All this has meant that I have obviously had to stay away from the Papworth Trust for 2 weeks which was annoying – and unfortunately it has become apparent that my parents business needs me to help out as much as I physically can (not much I grant) as it is struggling thanks to those ever so nice, generous, bailed-out Banks screwing them over, so it looks like I will have to stop volunteering at the trust for at least the time being as my family and I pull together to keep the roof over our heads.
All that together with the fact that I’m lonely as hell right now means I’m a wee bit pissed off with life in general at the mo.
I’m in love with one of my dialysis nurses. Actually I think I love three or four….. Does that make me bad?!
They do such a terrific job and under pressure too. I’ve had a thing for nurses ever since I was a teenager, when things went wrong first time around! They are people I admire above most if not all, as they have to put up with people from all walks of life with all sorts of temperament.
So here’s to all you nurses out there – Thank you for all you do and for all that you are.
And if there just happens to be a nurse out there who has a thing for someone like me, then erm… here I am, I’m all yours!
Life on dialysis can be extremely challenging, as if life wasn’t challenging enough as it was. I’ve had a look on the web for blogs of people suffering with the same condition as me, they are few and far between, and I was desperate to see and learn how people live with this problem and how they cope. I couldn’t find a blog in the UK so I thought lets make one then!
I’m going to try and share with you my ups and downs, crack a joke or two, and try my best to impress you with my photography occasionally too. Life is a journey they say, mine has taken a few unexpected detours and I wish to share the adventure with you.