Well I had my assessment and they seem very happy with me, So I remain active on the waiting list – Woohoo!
In the meantime I will continue to try and lose weight and increase my fitness, and try and remain positive!
Firstly apologies for no updates for so long. Life has been….interesting!
So we’ve brought a New Year in, bringing with it a realization that I’ve been on my own now for nearly a decade! Sad to think that for one reason or another but mainly to do with health and self image I have taken myself off the market for so long. Seems like the blink of an eye! One thing I have promised this year is that I’m not going to be so hard on myself, it is after all not my fault that I have renal failure and have had since the early nineties, people can either accept that or not – I no longer care.
Hi Ho It’s off to work I go…or not
It was about November last year after our beloved new government set out plans to reform the benefits system and get people back to work that I decided that I would like to at least try and get back into work. I have no idea if I will cope or not but I will be letting myself down if I didn’t give it a try. After a few failed applications I wrote to my MP asking for advice for someone like me. Someone with a life threatening illness who has been out of work for a long while. She kindly wrote back suggesting the Shaw Trust and wishing me luck. The Trust specializes in getting people on Incapacity benefit and people out of work long term back into employment and can supply training to that effect. Apparently.
I signed up to the Trust on the Pathways to Work Scheme only to find on my second visit that they were having their funding pulled and my adviser had been given her redundancy! No training will be available and as of the end of March I will be signed off from them. Bloody Marvelous.
So I’m on my own again trying to apply for work in a time where every job is hotly competed for!
To Date or Not to Date….
Now back to dating briefly! I have been experimenting with dating sites and actually managed to arrange a date with someone recently. There were a few obstacles, such as I live in Norfolk and she lives in London…. but I thought to hell with it lets give it a go! I caught the train down to Kings Cross where I met up with my date. We seemed to hit it off quite quickly and went to the Natural History Museum and saw the Wildlife Photographer of the year exhibition, then on to the Victoria and Albert Museum. I have to say it was a very enjoyable day but it turned out my date had some very serious issues of her own which when I was brutally honest with myself made me come to the realization that added to my messed up life it would be too much for either of us to take on. If you ever read this Beena, then I apologize and hope you understand…!
Unfortunately the offer I had on that site has expired and I cant afford to continue with it, which is a shame because it was a format that I quite got on with. Ah well! Will have to stick to the free ones!
Swimming and Gymming..!
I made a sort of New Years Resolution with a difference this year. Normally I don’t do resolutions but rather do something when I feel like it, but this year I have decided to try and get my weight down and be as active as my body will let me. I go to the gym 2 to 3 times a week now and swim 2 to 3 times a week. Now, when I talk about the gym, I’m actually on strict orders to do only light to moderate exercise so to a normal person it probably seems totally unworthwhile, but I have lost a lot of weight and have to say feel better in myself. All the machines I use are set to their easiest level but it still puts my pulse rate up high! I may have mentioned it earlier but although dialysis is a very effective treatment for kidney failure, it does take it out of you and can lead to muscle loss, the heart being the most important muscle! So it make sense to eat a good diet and exercise as best you can.
This Tuesday I have a Transplant Assessment at Addenbrookes to see if I am still a suitable candidate for a transplant. I am hoping they will be happy with me and that my ECG and chest x-ray don’t throw up any nasty suprises….